Welcome to Jungle

So Im admitted into hospital. Wait, that sounds worse than it is. Let me start again. Nearly a week ago, I had yet another bowel blockage, its cleared now, but they're keeping me in to treat a small chest infection...and Im plotting my escape 😅

Hay everyone, yes after being discharged valentines day 2019 this is my first lomg stay in hospital. I did have an overnight stay back around new years 2021 but, strangely, despite being in far more physical pain and exhaustion and having the worst time in my life mentally I was only in one night and back home less than 48 hours after being admitted.

4 years though, that has blown my mind. Im comfortable talking directly about this person so I'd say it reminds me back when I was talking to someone vaguely referenced called J. Back then I was still new to the positive affects of Trikafta/ Kaftrio and I would explain about my condition and the number of admissions I have and my constant cough. It was her that mentioned that she hasn't noticed me cough much on any of our facetime chats. It was then it first dawned on me that I didn't cough chronically anymore and that triggered such a positive mind set of what else could I be capable of should I not be dealing with some of the more irritating and limiting symptoms of my Cystic Fibrosis.

At first I thought first things first Id challenge my fitness levels while trying to potentially help fund a cure for Diabetes and raise money for CF charities too. I loved it, it was a fantastic event that made a huge improvement to my mental health too. Hence why I try to do a couple a year. I'm still determined to work with heading to 22 until they achieve their full funding and start their human trails on a potentially world changing cure for Diabetes (with the added bonus the menthod they have developed may also change organ transplantation forever).

Then I wanted to test my new reliability. I started university, work wise I did outstanding. I wanted to redo my second year but I was told the grades I achieved in my first year and the semester I had already completed I could still continue the third year and still get at least a 2:1. However, during my break they changed faculty and I would have been transferred to a political degree. This didn't really interest me and I had also made a promise to bring my nana along to the graduation but she sadly passed away not long after. I still have the option to return but im not sure I'll take it.

Anyway back on subject. A lot has changed on the ward in my absence. Many of the staff have moved departments during lockdown and not many have returned. Its so particular walking onto 500 and not staying hello to everyone and having a good catch up. On the bright side very few now was there to witness my episode of naked attraction being shown on all the ward TVs... whilst I was admitted 😅

The building has changed too, they have renovated the front entrance and have a costa and a W.H.Smith, and the canteen has been moved too. The menu is much the same. However, Im yet to find my favourite strawberry doughnuts... bastards.

While Im typing this is in a light hearted way, I am struggling a bit. Usually when my usual staff wasn't on my day would be quite inconvenient. Asking if Id like them to wash me, physios not knowing I can still out run them up the 13 floors of stairs. Not reading my notes properly resulting in stupid questions and then the nurses that insist on doing my meds, even though Ive been doing my own meds since the age of 8 and my level of cleanliness is a lot higher than theres. God forbid they do it wrong or try to say they know better. Im usually polite and only put my foot down when I feel im at risk. But when Im sleep deprived I have a 0 bullshit tolerability. Which brings me to my next issue. They are giving my evening IVs around 11:30 at night and then giving me my morning dose around 6. This morning however it was closer to 12:30 and then I was woke up at 5:45 for Ivs and then had to do a physio session at 7:30 this morning. Safe to say I'm on edge. Im not an angry person but God fogive me if anyone crosses me before I can go home to get some good rest.

Im currently keeping myself occupied by making tiktoks. I have posted some already but I will post them on the tiktok section of my website. I can also leave during the day so I managed to sneak home on valentines to surprise Tee with me cooking a candle lit dinner made from scratch as well as a few little bits and bobs. She struggles being in our house alone. So I like being able to be there for her...Even though nova would scare the pants off any potential burglar.

Right im going to attempt at getting some sleep. Wish me luck